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Surviving out of Spite: Daily Summaries Delivered
by G-PACT non profit
Welcome to Surviving out of Spite, a G-PACT podcast hosted by two patients living with gastroparesis. This show dives into the challenges , triumphs and everything in between that comes with managing a chronic condition. From heartfelt personal stories to practical advice and lots of laughs along the way, we explore the patient experience, provide informative content, and create a space where you're not alone. Join us as we talk life, health and all the things that make this journey unique.
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- 3 days ago35 min
Gastroparesis & the ER: What Happens When Doctors Don’t Believe You?
What happens when gastroparesis or chronic GI symptoms become an emergency, but the ER doesn’t understand what you’re experiencing?In this episode of Surviving Out of Spite, Sam talks with ER physician Dr. Rick Pescatore about gastroparesis, chronic abdominal pain, nausea, vomiting, dehydration, and emergency room care. They discuss why chronic GI patients may feel dismissed or misunderstood in the ER, even when symptoms are severe.They also get practical: How do you advocate for yourself in the ER? What should you bring to the hospital? How do you explain your baseline and symptom changes? What do you do when a doctor isn’t listening?This conversation covers ER advocacy, chronic illness, patient-provider communication, shared decision-making, and how patients and emergency physicians can work together.If you live with gastroparesis, IBS, chronic abdominal pain, nausea, vomiting, cyclic vomiting, or another gut-brain disorder, this episode is for you.And if you've ever sat in an ER thinking, “They don't believe me,” you're not alone.Here’s a link: https://belly-md.com/pages/menome-code for a code that gets our G-PACT community 6 months of MeNome Premium, free. Tap “That’s me” next to the G-PACT line, drop in an email, and the code appears right on the page. Copy it and it takes you straight into signup.
- 1 weeks ago51 min
EDS Exercise: How to Build Strength With Hypermobility
What does it really mean to build strength in a hypermobile body? In this episode, Sam sits down with Heidi Pasch, a hypermobility-informed personal trainer and contortionist, for an honest and empowering conversation about hypermobility, EDS, strength training, rehabilitation, chronic pain, and safe movement.For people living with Ehlers-Danlos syndrome (EDS), hypermobility, or chronic illness, exercise and movement can come with unique challenges. Heidi shares her experience and expertise on how to approach training in a way that prioritizes muscle health, injury prevention, stability, body awareness, and long-term strength rather than simply pushing for more flexibility.They also challenge some of the common misconceptions surrounding hypermobility and flexibility. Being flexible doesn't necessarily mean your body is stronger or healthier, and for some hypermobile people, excessive flexibility can create additional challenges with stability and injury risk. The conversation looks at why slow, deliberate, personalized movement can be so important when training a hypermobile body.Beyond physical training, Heidi discusses the mental shift that can come with chronic illness and disability, including body acceptance, body positivity, and moving away from society's constant focus on weight and appearance. They talk about how changing the way we think about our bodies can help people feel more empowered in their movement and rehabilitation journeys.https://www.heidipasch.com/shophttps://www.heidipasch.com/training-for-hypermobility-and-joint-stability
- 2 weeks ago44 min
Living With Ulcerative Colitis: Chronic Illness, Mental Health & Self-Advocacy
Ulcerative colitis, chronic illness, mental health, and self-advocacy — this episode of Surviving Out of Spite gets real about what it’s actually like living with an unpredictable chronic illness.Sam talks with Jesse about his ulcerative colitis (UC) diagnosis, severe symptoms and flares, bowel accidents, travel, mental health, stress, and the challenges of navigating life with IBD (inflammatory bowel disease). They also discuss chronic illness self-advocacy, toxic positivity, support from friends and family, finding community, and celebrating small wins.Jesse shares how his experience with ulcerative colitis ultimately led him into chronic illness advocacy and why having a support system can make such a difference when you're living with an invisible illness.If you live with ulcerative colitis, Crohn’s disease, IBD, gastroparesis, or another chronic illness, this conversation is a reminder that you are not alone, and you don't have to navigate it alone.
- 3 weeks ago53 min
Gastroparesis & Body Image: The Hidden Impact on Food, Eating & Self-Perception
Living with gastroparesis can affect far more than digestion. It can change your relationship with food, your body, clothing, relationships, work, and even your sense of identity.In this episode of Surviving Out of Spite, Sam sits down with Dr. Erica Agudo to talk openly about the realities of living with gastroparesis and chronic illness, both personally and professionally. Erica shares her experiences navigating unpredictable symptoms, dietary challenges, relationships, and the emotional impact of living with a condition that is often misunderstood.The conversation also explores the complicated relationship between gastroparesis, body image, food, and disordered eating. For people living with chronic digestive illnesses, eating and nutrition can become complicated by nausea, vomiting, food intolerance, dietary restrictions, weight changes, and the need to constantly adapt to symptoms. Erica and Sam discuss how these experiences can affect self-perception, clothing choices, confidence, and mental and emotional well-being.Erica also discusses her research into women's experiences with gastroparesis and why patient voices are essential to improving understanding, healthcare, and advocacy. They talk about the stigma surrounding gastroparesis, the importance of finding community, self-advocacy, and why sharing lived experiences can help patients feel less isolated.If you live with gastroparesis, chronic illness, digestive disease, or disordered eating, or you support someone who does, this conversation offers an honest look at some of the experiences that can be difficult to explain to people who don't live them.Your story matters. Your experience matters. And you are not alone.Subscribe to Surviving Out of Spite for honest conversations about gastroparesis, chronic illness, patient advocacy, medical experiences, relationships, mental health, and finding ways to keep going when your body doesn't cooperate.Interested in the journal? Click here: https://a.co/d/09nzOEhL
- 3 weeks ago46 min
Gastroparesis: Feeding Tubes & TPN: When Do You Need Them?
What happens when gastroparesis makes eating and drinking enough nearly impossible? When do feeding tubes or TPN become part of treatment?In this episode of Surviving Out of Spite, Sam sits down with Dr. Kent Sasse, a surgeon with decades of experience treating gastroparesis, to talk about nutritional support, feeding tubes, TPN, and the realities of living with severe gastroparesis.Most importantly, this conversation challenges the idea that nutritional support is a “last resort.” For some patients, it can provide the nutrition, strength, and stability needed to get back to living life.Disclaimer: This podcast is for educational and informational purposes only and is not a substitute for medical advice.
- Sep 23, 202645 min
Are we treating Gastroparesis all wrong?
Are we treating gastroparesis all wrong?In this conversation, Sam and Dr. Zachary Spiritos explore the complexities of gastroparesis, chronic illness, autoimmune disease, dysautonomia, and the gut-brain connection, and why treating gastroparesis may require looking beyond a gastric emptying test.They chat about the limitations of gastric emptying studies, the wide range of gastroparesis symptoms, and the importance of understanding potential underlying causes. They also explore how autoimmunity, dysautonomia, stress, and the nervous system can interact with gastrointestinal health.The conversation goes beyond diagnosis and treatment to address patient advocacy, compassionate care, medical research, gender bias, and the importance of listening to patient experiences. They discuss why better communication between patients and healthcare providers and a more curious, holistic approach to chronic illness is so important.If you live with gastroparesis or chronic illness, this conversation offers an important look at why the whole patient matters.
- Sep 16, 202657 min
Medical Trauma & Chronic Illness: The Mental Health Impact No One Talks About
Living with chronic illness can affect far more than your physical health; it can change your identity, relationships, mental health, and sense of connection.In this episode of Surviving Out of Spite, Sam sits down with psychotherapist and fellow patient Jodi Taub to discuss the emotional realities of chronic illness, medical trauma, mental health, and relationships.They explore isolation, feeling like a burden, the “shame-burden cycle,” asking for help, communicating your needs, and supporting loved ones through chronic illness. They also discuss medical trauma, changes in identity, peer support, coping strategies, therapy, and the possibility of post-traumatic growth.Most importantly, this conversation looks at how relationships, connection, meaning, and purpose can help us navigate life when illness makes everything unpredictable.If you live with gastroparesis or another chronic illness, or support someone who does, this conversation offers validation, perspective, and practical insight into the emotional side of chronic illness.Would you like to learn more about Jodi and her practice? Click below!https://www.joditaubtherapy.com/Interested in Jodi's book? Click the link below!https://a.co/d/0hKrCKAJ
- Sep 9, 202645 min
Chronic Illness & Identity: Who Are You After a Life-Changing Diagnosis?
Living with chronic illness can change everything; including how you see yourself, your future, and your place in the world.In this conversation, Sam and Deanna dive into the realities of living with chronic illness and rare disease, exploring how diagnosis can reshape identity, mental health, relationships, and everyday life. They talk about the ongoing process of understanding an illness, adapting to a life you didn't necessarily choose, and finding strength in the uncertainty.They also discuss the importance of community, patient advocacy, resilience, and sharing your story; and how connecting with others who truly understand can make chronic illness feel a little less isolating.If you're living with chronic illness or rare disease, we hope this conversation reminds you that your experience matters, and that there is power in finding people who understand.Don't forget to like, subscribe, and share this video to help connect more patients, caregivers, and advocates with the chronic illness community.Want to connect with Deanna?InstagramDeanna Steinle | LinkedInResilience is Beautiful Facebook Page
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About Surviving out of Spite
Welcome to Surviving out of Spite, a G-PACT podcast hosted by two patients living with gastroparesis. This show dives into the challenges , triumphs and everything in between that comes with managing a chronic condition. From heartfelt personal stories to practical advice and lots of laughs along the way, we explore the patient experience, provide informative content, and create a space where you're not alone. Join us as we talk life, health and all the things that make this journey unique.
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